First 5 Things to Do After Your Child Is Diagnosed with Fragile X
1: LEARN more about Fragile X from interactive tutorials and videos featuring doctors and parents.
2: BUYChildren with Fragile X Syndrome: A Parent's Guide for a comprehensive guide to helping your child.
3: FIND a parent support group in your area.
4: JOIN an e-mail list such as The Fragile X Listserv (scroll down on the page for instructions).
5: VISIT our listing of Fragile X links for more information and ideas.
Do you have suggestions for parents of children newly diagnosed with Fragile X? Tell them about that book that explained everything, that website full of resources, that e-mail group you still lean on, that experience with your child that made you see things differently. Those of us who have been there have important gifts to give those who have not yet done that. Offer your words of wisdom and experience where you see "Tell Your Tips" below.
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